Specific Sources Of Information On Orphan Drugs

The Food and Drug Administration (FDA) publishes an annual list of Orphan Drugs that have been either designated or approved for marketing. This is now available on the worldwide web (see www.fda.gov).

Most specific disease organizations, as well as umbrella disease organizations, provide information of relevant diseases for members and sometimes for researchers, and the public. These groups may also provide current scientific information. Again, most of these organizations have websites that are easily located by commonly used search engines when the disease of interest is used as the search term.

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