Title V Maternal and Child Health Programs

The Title V Maternal and Child Health programs provide a variety of services for children with chronic health conditions. Approximately 85 percent of the federal funds from Title V Maternal and Child Health programs go directly to the states, which are given wide flexibility in their use for maternal and child health programs. About one-third of the state allocations go to programs for children with special health care needs; about 50 percent of the funds are used for preventive programs in maternal and child health (Lesser, 1985). The remaining funds support a variety of special programs of regional and national significance in maternal and child health. These vary from the provision of support for professional training programs, a small research program, and targeted programs in areas such as improving health insurance coverage for children with special health care needs and grants to support the development of regional systems of care for various health conditions. Recent renewals of the Title V enabling legislation have charged the federal Maternal and Child Health Bureau with the responsibility of supporting the development of systems of care for children with special health care needs. The federal response to the U.S. Supreme Court Olmstead decision furthered this responsibility by again defining the bureau as the lead agency for community service systems, helping to ensure the integration of children with special health care needs into communities (New Freedom Initiative). These community service programs are meant to help organize the complex variety of services that children with chronic conditions may need.

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